My eye condition
Where can I find out more about my eye condition?
Write down any precise questions you have about your eye condition and make sure that you ask a member of the hospital staff when you go for your next hospital appointment. Hospital staff in the Eye Clinic will be able to give you answers to questions you have relating to your eye condition.
Henshaws Patient Support Service also exists to. Relevant leaflets. Definitly joining the relevant society and embracing the condition rather than pretending it isn't happening. The more you find out the more you will move on. There are source of help. You can't be in charge of something you know nothing about, even if you know how it feels.